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I'm starting to get tired.

PostPosted: Mon Jul 14, 08 7:47 pm
by Siva
I'm out of medication that works.

Before, I had a bad medication, but it worked very slightly. If I tripled the dosage, I could get an effect that could get me into school, as per our agreement.

The doctor gave me pills that were supposed to work better. If I take half of one, I get the same effect of about 2 of the first pills. If I take a whole pill, I get stomach pains and the same positive effect as the half.

Throwing up is an awful sensation, and I have to go through it - pills or not -, if I have to move much distance. When I did manage to go to school, I'd still have to get off the bus daily at McDonalds, and sprint for the toilet, as uncomfortable as sprinting is, resulting in more vomit.

If I keep having to throw up, it's going to have detrimental effects on my teeth.

The School say they understand, they smile at me and ask me if I'm okay to my face. But when I can't make it, they harass me to get back in, they threaten.

The days I can't make it, I call the school. 'If you would like to apply for a Welfare Officer position please contac'-- *click* 'Oh She's only in school on Wednesdays sorry Ruben'

They're even suggesting I start making full school days again. IF I CAN BARELY MAKE IT FOR A GOD FUCKING DAMN TWO HOURS TWICE A WEEK, HOW THE FUCKING FUCK AM I SUPPOSED TO MAKE IT TO SCHOOL FOR AN ENTIRE DAY, LET ALONE WITH OTHER FUCKING STUDENTS.

I'd rather if they said - "I have no idea what the fuck you're going through. In my opinion you have no issues Ruben, this is why we say the things we say."

At least that way there'd be some honesty, and I'd stop fucking hoping that just eventually, just eventually, they DO understand my illness.

PostPosted: Mon Jul 14, 08 7:56 pm
by clyzm
If it comes down to you making a decision whether to go to school or not based on the severity of your illness, I'd say just don't go when you feel like you don't want to. Use the point that the new medication doesn't work as well as your old one, if you haven't told them already.

But if that decision is not up to you, or if you're being forced to go to school, then all I can say is God bless and hope you get better eventually.

PostPosted: Mon Jul 14, 08 10:52 pm
by Ian
so you have been puking everyday since you had this new medicine? do you have the pill on a empty stomach and do you drink enough water or feel dehitrated ?

PostPosted: Tue Jul 15, 08 5:06 am
by Mr. Tastix
cataclyzm wrote:If it comes down to you making a decision whether to go to school or not based on the severity of your illness, I'd say just don't go when you feel like you don't want to. Use the point that the new medication doesn't work as well as your old one, if you haven't told them already.

But if that decision is not up to you, or if you're being forced to go to school, then all I can say is God bless and hope you get better eventually.


Well, that about covers what I was gunna say, lol. Good luck with that man, I'd suggest home-schooling but in retrospect: Don't fucking do it, ever in your entire fucking life.

Couple of reasons:

1. Say "Bye Bye!" to your social life and in your case, that could be a bad thing. It wasn't so much for me as I had none before doing correspondence.
2. The work is generally boring as fuck (if you do correspondence, like I did) and the teachers are as dull as a burnt out lightbulb.

So yeah, I hope your problem gets sorted out soon. Have you ever considered contacting your doctor about the problem? Ask if it's normal?

PostPosted: Tue Jul 15, 08 9:36 am
by Siva
Ian wrote:so you have been puking everyday since you had this new medicine? do you have the pill on a empty stomach and do you drink enough water or feel dehitrated ?


I've been puking every day for the past 4 years.

~Psychotic~ wrote:Well, that about covers what I was gunna say, lol. Good luck with that man, I'd suggest home-schooling but in retrospect: Don't fucking do it, ever in your entire fucking life.

Couple of reasons:

1. Say "Bye Bye!" to your social life and in your case, that could be a bad thing. It wasn't so much for me as I had none before doing correspondence.
2. The work is generally boring as fuck (if you do correspondence, like I did) and the teachers are as dull as a burnt out lightbulb.

So yeah, I hope your problem gets sorted out soon. Have you ever considered contacting your doctor about the problem? Ask if it's normal?


I wasn't planning on Home Schooling for those reasons.

But thankfully, my Mum is here for me. We're going in today, It's the last week of school anyhow.

PostPosted: Tue Jul 15, 08 10:16 am
by Mr. Tastix
Good luck with that.

PostPosted: Tue Jul 15, 08 1:19 pm
by Spiderbot01
What on earth is wrong with you?

PostPosted: Tue Jul 15, 08 4:00 pm
by clyzm
Sounds like stomach flu?

PostPosted: Tue Jul 15, 08 6:10 pm
by Spiderbot01
For 4 years!?

PostPosted: Tue Jul 15, 08 10:55 pm
by Artin
So what illness/disease do you have anyway?

Also, if you've been puking everyday for the past 4 years, shouldn't your teeth be like gone or something?

PostPosted: Tue Jul 15, 08 11:14 pm
by Spiderbot01
My bets on AIDS.

PostPosted: Tue Jul 15, 08 11:47 pm
by Survive.
[A]ENKIDUDU wrote:My bets on AIDS.


That's fucking harsh...

PostPosted: Wed Jul 16, 08 9:51 am
by Siva
~Cheesemeíster~ wrote:Also, if you've been puking everyday for the past 4 years, shouldn't your teeth be like gone or something?


Not necessarily, eventually there is a point where you throw up everything you've eaten, and you just go into a cycle of retching for about an hour. Thankfully I can close my mouth while retching now so I can get on with shit. Once I threw up a bit of Stomach acid but I'm fine.

Also, it seems to come in Seasons. This season being the longest and having lasted since February last year.

[A]ENKIDUDU wrote:My bets on AIDS.

Serious thread, warn

PostPosted: Wed Jul 16, 08 10:00 am
by James
I got a feeling Max was egged on to say that.

PostPosted: Wed Jul 16, 08 12:02 pm
by Spiderbot01
Protocol wrote:
~Cheesemeíster~ wrote:Also, if you've been puking everyday for the past 4 years, shouldn't your teeth be like gone or something?


Not necessarily, eventually there is a point where you throw up everything you've eaten, and you just go into a cycle of retching for about an hour. Thankfully I can close my mouth while retching now so I can get on with shit. Once I threw up a bit of Stomach acid but I'm fine.

Also, it seems to come in Seasons. This season being the longest and having lasted since February last year.

[A]ENKIDUDU wrote:My bets on AIDS.

Serious thread, warn


Well what is it then?

PostPosted: Wed Jul 16, 08 12:21 pm
by Batchy
Probably for his eyes.

PostPosted: Wed Jul 16, 08 12:23 pm
by Dae
damn... man
you're a person of great endurance

PostPosted: Wed Jul 16, 08 3:54 pm
by Leenuks
When you live with sickness, especially for years, you do get used to it to a degree.

I know, Ive suffered chronic pain since I was 13 and Im now 38. Im used to it but its very tiring and hurts still. Ive learnt to deal with it in my own way.

Put it this way. If I or Protocol was able to transfer our sicknesses for a day to someone healthy, that has hardly lived with suffering, then that person would probably go into shock of some sorts.

If you have suffered a broken bone like a leg or arm, imagine suffering the pain of it everyday of your life till you die.

So Protocol, hang in there mate as I guess thats just what your doing. Your not alone.

Leenuks

PostPosted: Wed Jul 16, 08 5:31 pm
by Siva
Leenuks wrote:When you live with sickness, especially for years, you do get used to it to a degree.

I know, Ive suffered chronic pain since I was 13 and Im now 38. Im used to it but its very tiring and hurts still. Ive learnt to deal with it in my own way.

Put it this way. If I or Protocol was able to transfer our sicknesses for a day to someone healthy, that has hardly lived with suffering, then that person would probably go into shock of some sorts.

If you have suffered a broken bone like a leg or arm, imagine suffering the pain of it everyday of your life till you die.

So Protocol, hang in there mate as I guess thats just what your doing. Your not alone.

Leenuks


Thank you mate.

That meant alot to me, and you hit the nail on the head at the same time.

[A]ENKIDUDU wrote:Well what is it then?


Ask the doctors, they still have yet to pin it on anything concrete. The current guess is some form of Abdominal Migrane

PostPosted: Thu Jul 17, 08 8:24 am
by Mr. Tastix
Leenuks wrote:When you live with sickness, especially for years, you do get used to it to a degree.

I know, Ive suffered chronic pain since I was 13 and Im now 38. Im used to it but its very tiring and hurts still. Ive learnt to deal with it in my own way.

Put it this way. If I or Protocol was able to transfer our sicknesses for a day to someone healthy, that has hardly lived with suffering, then that person would probably go into shock of some sorts.

If you have suffered a broken bone like a leg or arm, imagine suffering the pain of it everyday of your life till you die.

So Protocol, hang in there mate as I guess thats just what your doing. Your not alone.

Leenuks


I reckon it sucks, so I respect anyone who has to go through such pain on a regular basis heavily. My mates mother being one of them.

I will never truly understand the pain somebody endures with illnesses like this, not unless I ever actually went through it myself.

But even in the entirely shit times you should think positive. You may wish you are dead but be positive you're not dying when somebody else in the world is. Be positive that at least, whether it be online in virtual reality or offline in reality, that at least one person actually understands your pain and can actually sympathize with you.

It doesn't matter what positive outlook you take so long as it's just that -- positive. And not negative, I learnt this thankfully before it was too late. Other people weren't so lucky and you should be glad that you're not one of those people.

PostPosted: Fri Jul 18, 08 4:06 am
by Batchy
Abdominal Migrane


My bet is tumors or cyst.

PostPosted: Fri Jul 18, 08 9:33 am
by Siva
A MRI would have picked that up

PostPosted: Fri Jul 18, 08 10:58 am
by Chococat
Hope you get better eventually.

My brother throws up every single day, he was eventually (they thought it was numerous things) diagnosed with some sort of uncurable hernia thing which makes him have difficulty keeping any food down because the bile in his stomach constantly rises to his throat. Apparently there is no cure for it yet, hopefully there will be.

PostPosted: Fri Jul 18, 08 11:27 am
by Leenuks
You know your own symptoms so if you havent yet done so, search medical sites for similar symptoms etc.

But do be careful not to self diagnose TOO much. Some people get carried away and think they have everything.

I was diagnosed with scheuerman's syndrome when I was a kid and it stuck. Wasnt until last year I found the root of my problems. A defective gene called fibrillin 1 or FBN1. It answers why Im in pain all the time with no apparent cause. This I found on my own. Geneticists shrugged thier shoulder "dunno".

And no I dont have Marfans syndrome even though its the most common problem that gene causes.

So yeah Im a mutant and the Fantastic four wouldnt be the same!